Federal Legislation

As a parent, you are in the best position to advocate for your child. To do that, you must be aware of what you can do to ensure that your child receives the services and accommodations she or he needs. Below are some resources on rights and laws designed to give your child the best education possible. Remember, your Hemophilia Treatment Center (HTC) or local bleeding disorders organization is there to help you along the way.
- Stay informed. Understand your child's diagnosis and how it impacts her or his education.
- Know your rights. Your child’s right to a proper education is protected under two important federal laws, the Individuals with Disabilities Education Act (IDEA), which requires schools to develop an Individualized Education Program (IEP), and Section 504 of the Rehabilitation Act of 1973. These laws are described in detail below.
- Understand your child's IEP. Your school is required by law to help you develop this plan. If you have questions, don't be afraid to ask. If you still have questions, continue to ask until you completely understand the process, the IEP, and how this will help your child's education. Do not sign an IEP unless you understand and agree with its contents.
- Play an active role in preparing your child's IEP or Section 504 plan. Make suggestions. Speak up if you feel a goal, objective, or accommodation is not appropriate.
- Get it in writing. When possible, obtain written documentation from teachers, administrators, or other professionals working with your child describing any behavioral or academic concerns they may have.
- Keep careful records. This should include any written documentation you have obtained, communication between home and school, progress reports, and evaluations. You should also keep a copy of any letter you send to the school. Keep these records well organized and in one place—they may be very useful in the future.
- Keep open communication with your child’s teachers. Schedule meetings to ensure you and school personnel are on the same page with your child’s progress and IEP or 504 plan. Ask them how to best keep open communication, whether by e-mail, in-person meetings, or a communication notebook.
- Encourage your child every day. Help your child create a system for completing homework assignments and other school projects.
Educational Rights
Your child’s right to a proper education is protected under two important federal laws, the Individuals with Disabilities Education Act (IDEA) and Section 504 of the Rehabilitation Act of 1973. These laws are described in detail in the Table below.
The Individuals with Disabilities Education Act (IDEA) (Public Law 101-476) | |
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Purpose | A federal law designed to protect the rights of students with disabilities by ensuring that everyone receives a free appropriate public education, regardless of ability |
Process |
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Documents |
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Section 504 of the Rehabilitation Act of 1973 (Public Law 93-112) | |
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Purpose | A civil rights statute that specifies that anyone with a physical or mental impairment that substantially limits at least one major life activity is eligible for reasonable accommodations |
Process |
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Documents |
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