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End of Life Planning

When you have a chronic illness like hemophilia or von Willebrand Disease, taking care of your health becomes second nature. Planning for your health care—and expressing your health concerns—must be part of your planning, especially when you’re thinking far into the future to a time when you could be in a situation where you are unable to express your wishes.

Studies show that end-of-life planning reduces stress on patients and families, increases patient satisfaction with their care, and reduces the likelihood of depression and severe grief reactions.

Two main topics are important to take into account when considering end-of-life care:

This section of Step Out offers general information about these topics that you and your family may find useful. Remember, every situation is different and needs to be considered carefully before making decisions. It is best to consult with trusted people and people who have experience with end-of-life planning before making decisions on any of these topics. You should always read and understand everything you receive from your insurance provider and pay close attention to the fine print in all policies.