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Online Information and Sharing

Children are part of a new generation of health care consumers. Teens can get information on treatments, medications, and find answers to many of their questions online. The internet has revolutionized the way people with bleeding disorders are able to interact and build a social support community. Many people with bleeding disorders keep in touch using methods that include e-mail, texting, Twitter, Facebook, and Skype. Technology is a great way to connect with friends and can help your child feel less isolated.

The Internet can be an invaluable tool as long as you take a few precautions.

Here are some tips about the using the Internet to share with your child:

  • Don’t believe everything you read online. It’s tempting to find answers to your health-related questions online. However, the web is not like a school textbook where all the facts have been checked for accuracy. Anyone can post anything online and there can be misleading information. Always refer to your health care provider for the most accurate information related to your health.
  • Think before you post. Sharing intimate details now can cause problems in the future. Information you post in chat rooms, blogs, on Facebook and Twitter, or other sites for family and friends to see may also been seen by the general public, including potential employers.
  • Do your research. Be careful about sharing personal information, including information related to a bleeding disorder on social sites and chat rooms.
    • Read the About Us or FAQ sections to learn as much as possible about a site before you post your information.
    • Read the user agreement carefully.
    • Read the privacy policy before entering your name, address, and any other personal information in a database.
  • Block or ignore unwanted communication. Most chat rooms or instant messaging programs allow you to block those who are not on your buddy list. Carefully think about who you accept as a friend on Facebook and other social networking sites.
For more information about safe Internet use, go to Online Information and Sharing.