What Kids Should Know
Education is a lifelong process for individuals with bleeding disorders. To become independent and take control of their treatment, children need to be educated about their bleeding disorder. Knowing about bleeding disorders can also help children and teens communicate with their peers, teachers, coaches, and medical team. By learning the basics of their bleeding disorder and treatment, children and teens will grow up to be informed and active participants in their health care.
This section of Next Step provides important information on:
- Bleeding disorder basics
- How to recognize a bleed
- Why you should treat a bleed quickly
- How to treat a bleed
- Where do you receive factor replacement therapy
- Other types of medicine to treat bleeds
Are You Up on the Facts? Test Your Knowledge
Here’s a chance for you to test your knowledge (and misconceptions) about 2 common bleeding disorders—hemophilia and VWD.
What Kids Should Know
Most likely, you, your child, and your Hemophilia Treatment Center (HTC) have been working together for a while and managing your son’s or daughter’s bleeding disorder. At first, the task and responsibility might have seemed overwhelming. Now you may feel like an expert.
As your child gets older and gains more responsibility for his or her own care, you might find it helpful to refer back to Treatment Basics in First Step to help answer any questions you or your son or daughter might have.
This What Kids Should Know section of Next Step covers many treatment topics and is designed specifically for kids 9 to 15 years of age. It strives to teach children the importance of taking charge of managing their bleeding disorder. It provides them with tools to help accomplish their goals and prevent their bleeding disorder from getting in the way of everyday life.
