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Hemophilia is one of the most costly chronic conditions in the world to treat — with an estimated annual cost for therapy of $60,000 to $250,000. In some instances, costs may exceed $1 million annually. Typically, costs associated with treating von Willebrand disease are less, ranging from a few thousand dollars to more than $60,000 per year, depending upon its type and severity.

The medical and insurance coverage costs associated with treating a bleeding disorder can place a strain on anyone who is financially responsible for the care of a person with a bleeding disorder. When first faced with the diagnosis, in particular, the need to understand both the treatment plan and the treatment costs can be overwhelming.

Understanding and navigating the health care and insurance systems can be daunting. While health care professionals and organizations can help people with bleeding disorders better understand health insurance, individuals are ultimately responsible for most of the decisions surrounding health care payments. They must become informed and become advocates not only for quality medical care but also for financial matters.

This section of Insurance covers: